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Down Syndrome Research Improvement Bill
Recent Bills/Down Syndrome Research Improvement Bill

Down Syndrome Research Improvement Bill

IntroducedMay 19, 2025
In the Senate3 months ago
Intro
House
Senate
Pres
In the Senate Health, Education, Labor, and Pensions Committee.
Most bills stop here and never get a vote.
HealthCongressional oversightGeneticsHereditary and development disordersMedical researchResearch administration and funding
More:Bills That Passed the HouseHealthcareHouse Bills
Why This Matters

This bill establishes a program to enhance research and training related to Down syndrome, aiming to improve understanding and treatment of the condition and its associated health issues.

If you have a family member with Down syndrome, this bill could lead to better medical care and support for them.
Who this affects
Individuals with Down syndrome · Families
What this bill changes
  1. 1This bill creates a program to research Down syndrome and related health issues.
  2. 2It promotes studies on how Down syndrome affects people throughout their lives.
  3. 3The bill aims to increase clinical trials? specifically for individuals with Down syndrome.

The debate

The case for

More research would improve life for people with Down syndrome and others.

House Energy and Commerce CommitteeMajority report
vs

The case against

No committee member filed a written objection. The committee approved it 46 to 0.

Go deeper

Read the detailed summary

De Ondra Dixon INCLUDE Project Act of 2025This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research. Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.

Read full document

Last changed 2 months ago · checked hourly

Bill Progress3 of 4
A bill has to pass the House and Senate, then go to the President.
Intro
House
Senate
Pres
IntroducedMay 19, 2025
Sponsors
See all 19 sponsors
HouseJul 20

Passed by voice vote.

SenateCurrent

In the Senate Health, Education, Labor, and Pensions Committee.

Most bills stop here and never get a vote.

President

The President

Donald Trump
President
Not Sent Yet
Related Bills
Senate bill with the same name
Senate Bill · S 1838
3 of 4 · In the House
Funds Down Syndrome Research and Support
DeOndra Dixon INCLUDE Project Act of 2026
·Healthcare
Related bill
Senate Bill · S 891
1 of 4 · In Committee
Bipartisan Health Care Act
Related bill
House Bill · HR 1768
1 of 4 · In Committee
Lower Costs for Everyday Americans Act