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Down Syndrome Research Improvement Bill
Recent Bills/Down Syndrome Research Improvement Bill

Down Syndrome Research Improvement Bill

IntroducedMay 19, 2025
Passed House24 days ago
Intro
House
Senate
Pres
In Senate committee
HealthCongressional oversightHereditary and development disordersMedical researchResearch administration and fundingGenetics
Why This Matters

This bill establishes a program to enhance research and training related to Down syndrome, aiming to improve understanding and treatment of the condition and its associated health issues.

If you have a family member with Down syndrome, this bill could lead to better medical care and support for them.
Who this affects
Individuals with Down syndrome · Families
What changes is this bill making?
  1. 1This bill creates a program to research Down syndrome and related health issues.
  2. 2It promotes studies on how Down syndrome affects people throughout their lives.
  3. 3The bill aims to increase clinical trials specifically for individuals with Down syndrome.
  4. 4It supports research to improve diagnosis and treatment of conditions that often occur with Down syndrome.
  5. 5The bill requires regular reports to Congress on the research conducted.
Read the detailed summary

De Ondra Dixon INCLUDE Project Act of 2025This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research. Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.

Read full document
Bill Progress3 of 4
Bills must pass the House, Senate, and be signed by the President to become law.
Intro
House
Senate
Pres
IntroducedMay 19, 2025
Sponsors
See all 19 sponsors
HouseJul 20
SenateCurrent

In Senate committee

President

The President

Donald Trump
President
Awaiting Vote
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