What is the current status of SRES 620?

SRES 620 is currently: Passed Senate.

Who sponsored SRES 620?

SRES 620 was sponsored by John Barrasso (R), Sen.

Rare Disease Day Resolution

IntroducedFebruary 26, 2026

Passed Senate5 months ago

Intro

Senate

Passed/agreed to in Senate

HealthCommemorative events and holidaysHealth promotion and preventive careMedical tests and diagnostic methodsMedical research

Why This Matters

This resolution designates February 28, 2026, as 'Rare Disease Day' to raise awareness about rare diseases and the challenges faced by those affected. It highlights the need for improved diagnosis and support for research into treatments and cures.

If you or someone you know has a rare disease, this resolution helps bring attention to the need for better diagnosis and treatment options.

Who this affects

Individuals with rare diseases · Families of individuals with rare diseases · Researchers · Healthcare providers

What does this resolution do?

1More than 30 million people in the U.S. live with at least one of over 10,000 known rare diseases.
2Approximately 95 percent of rare diseases currently lack an FDA-approved treatment.
3In 2025, 23 out of 46 new drugs approved by the FDA were for rare diseases and received orphan-drug designation.
4Rare Disease Day has been observed in the U.S. since February 28, 2009, and takes place annually on the last day of February.
5The resolution recognizes the 43rd anniversary of the Orphan Drug Act, which has significantly advanced research and treatment for rare diseases.

Read the detailed summary

This resolution designates February 28, 2026, as Rare Disease Day.

Read full document

Rare Disease Day Resolution

IntroducedFebruary 26, 2026

Passed Senate5 months ago

Intro

Senate

Passed/agreed to in Senate

HealthCommemorative events and holidaysHealth promotion and preventive careMedical tests and diagnostic methodsMedical research

Why This Matters

If you or someone you know has a rare disease, this resolution helps bring attention to the need for better diagnosis and treatment options.

Who this affects

Individuals with rare diseases · Families of individuals with rare diseases · Researchers · Healthcare providers

What does this resolution do?

1More than 30 million people in the U.S. live with at least one of over 10,000 known rare diseases.
2Approximately 95 percent of rare diseases currently lack an FDA-approved treatment.
3In 2025, 23 out of 46 new drugs approved by the FDA were for rare diseases and received orphan-drug designation.
4Rare Disease Day has been observed in the U.S. since February 28, 2009, and takes place annually on the last day of February.
5The resolution recognizes the 43rd anniversary of the Orphan Drug Act, which has significantly advanced research and treatment for rare diseases.

Read the detailed summary

This resolution designates February 28, 2026, as Rare Disease Day.

Read full document