Rare Disease Day Resolution
Official: A resolution designating February 28, 2026, as "Rare Disease Day".
This resolution designates February 28, 2026, as 'Rare Disease Day' to raise awareness about rare diseases and the challenges faced by those affected. It highlights the need for improved diagnosis and support for research into treatments and cures.
This resolution designates February 28, 2026, as Rare Disease Day.
1. More than 30 million people in the U.S. live with at least one of over 10,000 known rare diseases. 2. Approximately 95 percent of rare diseases currently lack an FDA-approved treatment. 3. In 2025, 23 out of 46 new drugs approved by the FDA were for rare diseases and received orphan-drug designation. 4. Rare Disease Day has been observed in the U.S. since February 28, 2009, and takes place annually on the last day of February. 5. The resolution recognizes the 43rd anniversary of the Orphan Drug Act, which has significantly advanced research and treatment for rare diseases.
Individuals living with rare diseases and their families, as well as researchers and healthcare providers.