Who sponsored HRES 1133?

HRES 1133 was sponsored by Thomas Kean (R), Rep.

Shwachman Diamond Syndrome Awareness Day

IntroducedMarch 24, 2026

4 months ago

Intro

House

Referred to the House Committee on Energy and Commerce.

Health

Why This Matters

This resolution designates November 7 as Shwachman Diamond Syndrome Awareness Day to promote understanding of this rare genetic disorder.

If you want to support awareness and research for rare genetic disorders, this resolution highlights an important cause.

Who this affects

Individuals with Shwachman-Diamond syndrome · Families · Healthcare providers · Researchers

What does this resolution do?

1This resolution aims to raise awareness about Shwachman-Diamond syndrome, a rare genetic disorder affecting around 2,000 Americans.
2The condition primarily impacts the bone marrow, pancreas, and skeleton, leading to various health challenges.
3Early diagnosis and ongoing care can improve the quality of life for those affected by this syndrome.
4November 7 each year will be recognized as a day to promote understanding and research into this disorder.
5Raising awareness may encourage more support and funding for research into effective treatments.